To get a better insight to my blog, Read my Intro!
The Spoon Theory written by Christine Miserandino →
Great essay on understanding people with lupus and other chronic illnesses.
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Tumblr saves the day.
Ive been working on data for a Lupus Community site I want to create as a sort of community serve project and a way for people to exchange ideas on how to better manage their lives with Lupus, but I was stressing how to create the site. Then last night it just hit me, why not just create a tumblr for it with a bunch of different pages where people can post on it? lol, it seems so obvious now but I’m glad I figured it out, I’ll probably buy my own domain name for it in the future. I’m thinking Lupusandyou.com or Lupusnu.com ? If you have any suggestions let me know. Anyways Halloween weekend, time to party, but of course get shit done during the day.
Later
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Just one of those days
I realized today that sleep is going to be an integral part of my life from now on. It’s something that i struggle with because I do have mild insomnia due to by raging heart beat of 109 beats per minute due to the lovely pill prednisone. A person with Lupus needs at least 8-10 hrs a sleep a night if they want to be even remotely functional, also I am at that point that when you have been on prednisone for this long, even waking up 1 hr early will leave you with a swollen face and eyes that are just not going to open. Yeah, these things suck, but survival in this world takes adaptation, and that adaptation is getting more sleep. Hopefully that will fix the issue. No excuses though, still got to get all the shit that needs to be done, done. Be the change you want to see in the world!
